Papoutsi et al., 2015: Patient and Public Views about the Security and Privacy of Electronic Health Records (EHRs) in the UK: Results from a Mixed Methods Study

Topic:

In the survey, 79 % of participants reported that they would worry about the security of their record if this was part of a national Electronic Health Records (EHR) system and 71 % thought the National Health Service (NHS) was unable to guarantee EHR safety at the time this work was carried out. Almost half (47 %) responded that EHRs would be less secure compared with the way their health record was held at the time of the survey. Of those who reported being worried about EHR security, many would nevertheless support their development (55 %), while 12 % would not support national EHRs and a sizeable proportion (33 %) were undecided. There were also variations by age, ethnicity and education. In focus group discussions participants weighed up perceived benefits against potential security and privacy threats from wider sharing of information, as well as discussing other perceived risks: commercial exploitation, lack of accountability, data inaccuracies, prejudice and inequalities in health provision.

survey followed by focus groups, 2761 participants and 13 focus groups

Constructs in this publication:

Construct	Cites	Category	Questions given?	Content validity	Pretests	Response type	Notes
Electronic Health Records security	Luchenski et al., 2013, Luchenski et al., 2012		yes	no	multiple pilots	unclear

Citation:

Chrysanthi Papoutsi, Julie E. Reed, Cicely Marston, Ruth Lewis, Azeem Majeed, and Derek Bell. Patient and public views about the security and privacy of Electronic Health Records (EHRs) in the UK: results from a mixed methods study. BMC Medical Informatics and Decision Making, 15(1):86, October 2015. doi:10.1186/s12911-015-0202-2.

Bibtex

@article{papoutsi_patient_2015,
 abstract = {Although policy discourses frame integrated Electronic Health Records (EHRs) as essential for contemporary healthcare systems, increased information sharing often raises concerns among patients and the public. This paper examines patient and public views about the security and privacy of EHRs used for health provision, research and policy in the UK.},
 author = {Papoutsi, Chrysanthi and Reed, Julie E. and Marston, Cicely and Lewis, Ruth and Majeed, Azeem and Bell, Derek},
 doi = {10.1186/s12911-015-0202-2},
 issn = {1472-6947},
 journal = {BMC Medical Informatics and Decision Making},
 month = {October},
 number = {1},
 pages = {86},
 shorttitle = {Patient and Public Views about the Security and Privacy of {{Electronic Health Records}} ({{EHRs}}) in the {{UK}}},
 title = {Patient and Public Views about the Security and Privacy of {{Electronic Health Records}} ({{EHRs}}) in the {{UK}}: Results from a Mixed Methods Study},
 volume = {15},
 year = {2015}
}

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